Friday, June 20, 2008

Eyes fried on Friday

I have been struggling today as my work PC has been changed, and I have spent far too much time trying to get the screen to be dark enough not to give me snow-blindness and the font large enough to be able to read it. Using the “accessibility options” resulted in the web being displayed as “text only” which is not ideal for knitting blogs! I also suffer from RSI (haven’t mentioned this before) so need to be careful about my seating position - sigh! I think its OK now.

But enough of this complaining!

This weekend I will be at the sewing machine making a duvet cover for grandma’s impending visit. I have two vintage cotton sheets, some funky buttons and a pile of Liberty scraps: watch this space! I also need to paint the spare room: Earthpaints in “Faded Silk”, which is a pale dusty pink. I am assured that FL has been “tidying up” so hopefully I will be able to get at the walls with my ladder!

Thanks to everyone who commented on FL’s side effects. I think the big issue is that he is part of a clinical trial, but hasn’t seen a “trial” doctor in months. I don’t have much faith in the results of this so-called “research” because it is conducted via Chinese Whispers (generic doctor has to go off and consult with the Consultant if we ask a tricky question) and I know, for example, that FL is not supposed to have Zometa while part of this trial – it is not one of the “approved” combinations. The doctor he has been seeing actually admitted that he was only interested in the Myeloma, and since FL’s "numbers" are stable, he is doing fine as far as that doctor is concerned. He told us to see our GP about everything else. There is no holistic approach. And most bizarrely of all, FL is now telling me that the numbness in his hands and feet is going away, and he can now feel his fingers and toes again – despite a doubling of the Thalidomide dose, which caused the loss of feeling in the first place. WTF? So it feels like all we can do is stay alert to changes and report them to anyone who will listen.

I will leave you with some lovely links:

Norah Gaughan Volume 3 - I can hardly wait!
Organic handprinted hemp and cotton fabric from Etsy or Volksfaden - ooh!
And a source of lovely kids' fabrics in the UK: Dots and Stripes

2 comments:

RooKnits said...

Good luck with the painting and sewing. I think I'm going to get my machine out this weekend too. I found the Dots and Stripes site the other day and subscribes to "Ottobre" - three issues arrived last week and are all fabulous! Glad I have lots of small people to make clothes for.

Bryony Ramsden said...

That sucks about the consultants. Why on earth are they called consultants if you can't ask them questions and get a straight answer? Hmmm...

Anyway, I should point out that you are enabling far too much, and the duvet cover sounds intriguing. You bugger. I got paid yesterday and am now ummming and ahhhing over which fabrics to buy from Superbuzzy :S