As much for my own record as anything else, here is an update on today's hospital appointment.
We saw the kind and gentle doctor who first gave FL his diagnosis. She said that he was due another Freelite test as he hasn't had one since December. This is the important test for MM, and will allow the doctors to measure the speed at which the disease is returning. All his "usual" tests are not showing anything to worry about: kidney function is fine, calcium levels fine.
The only snag is that he is not scheduled to see a doctor next month, when the results will be back, so she told him to ask the nurse to get a doctor to check the results while he is in for his regular Zometa infusion. This is not terribly helpful. He won't have a doctor's appointment, but he will be given an important result. Sigh. I don't usually go along for his Zometa appointments but I don't want to miss something...
I asked her what the plan was when the MM comes back. She said there were "still options" and that the most likely next line of attack would be "injections". I asked what they were called (well, duh!) and she named Velcade. 4 cycles, by injection, on an outpatient basis. She seemed surprised that I had heard of Velcade - clearly FL's notes do not include a comment about his "web-obsessed myeloma-blog-stalker wife" after all!
So there we go. Now we know what we are in for when the time comes.