Just back from the hospital.
Hey - guess what? They had no results again! But the Macmillan nurse took one look at my face and popped FL's file onto the pile to see the Consultant. An hour and a half later we were seen (because another nurse thought there was a mistake and moved the file back onto the pile for Zometa-only.... grrrr!)
But... the Consultant apologised. She rang Birmingham herself and spoke to the Lab and extracted results from April and May.
April - Kappa 159 more than Lambda
May - Kappa 192 more than Lambda
This Consultant likes to measure the differential rather than the ratio, which was the figure I had always thought we should be monitoring. The last result on file was a difference of 22 back in December. So, the Consultant helpfully did the maths (!) and explained there was a tenfold increase in his Kappa Free Light Chains since December.
What does this mean? It means he is back on monthly Doctor appointments at the hospital and she will be "having a word with Biochemistry" to ensure that his Light Chain tests are requested and reported back every month within the month.
Yes, but what does this mean? It means his Myeloma is back and he is at increasing risk of kidney failure due to the Free Light Chains depositing themselves in places they should not be. I asked if this meant he should not drink and she deliberately avoided my real question by saying he should aim to drink 2 to 3 litres of fluid a day. He is not to take proprietory painkillers as they also silt up the kidneys - but he doesn't take them anyway.
Lucky I booked that holiday before I knew, because we are going in four weeks and it might be our last chance for a long time!
It is now 12.41. I left FL at the hospital having his Zometa drip an hour ago, expecting he would go straight home afterwards He just texted me to say they have decided to x-ray his back to check on the golf injury. He says I don't need to be there. But I am frustrated that I am not. Can I swear please?!
Come back tomorrow and I will be cheerier I promise - I have a dress to show you!
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7 comments:
I would take this opportunity on your own to swear and swear, and do a bit of weeping and wailing and gnashing of teeth as well if that's required. {{}} M
:o(
But at least you have confirmation of what you thought you knew. If I were you I'd be heading back to the hospital. Hugs Roo
xxx
If ever there was a time when permission to swear was unnecessary, I think this would be it. Love to all of you xx
b%ggar:( I am so sorry Ruth but thank goodness you got a sympathetic consultant who actually answered questions for you. I wish they had done that when you first asked though.
Enjoy the holiday, make that your priority for you all
love
amber
Hugs. Swear away.
Sorry that it's back, keep fighting and look forward to your holiday.
Ugh :( But finally someone has talked sense and meaning to you. Swear all you want, then some more for the hell of it.
xxx
Hope you had a good swear, made your way back to the hospital - and found all okay.
But, if not, then keep telling it to us.
Great big hugs to you, xxx
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