Thursday, November 19, 2009

Velcade Cycle 2, Day Four

FL is at the hospital for his Velcade infusion. I am at work. He sees no reason for me to be there if he isn't due to see a doctor.

His insomnia continues, but I think he has learned his lesson about waking me up in the middle of the night! (I am such a grumpy cow when my sleep is interrupted!) He continues to report pain in his ribs / lung, which he describes as being like a stitch and makes breathing difficult on the golf course. But he says he doesn't need a painkiller. He was wearing his coat in the house yesterday but refused to turn up the heating / light the woodburner. Sigh. Still stubborn!

In case you are wondering, we are still very happy together! In the midst of all the mental confusions, mis-hearings and misunderstandings, there is an underlying current of good humour. We seem to function on so many levels. There's the everyday coping - deciding who will collect a kid from their music lesson (him) / walk the dog (me). Then the minutiae of daily symptoms to discuss and assess - does a nosebleed warrant a phone call to the clinic (in case it is a sign of a drop in his platelet count)? Then the longer-term stuff - like him wanting me to book a holiday to Iceland. What - alone?! Then the quiet, comfortable, peaceful times when we are side by side just being together. Those are the best.

1 comment:

Steven L. Ritter said...

Yes... Normal life..interlaced with this MM stuff. Jenni and I have already been there. I think it all makes her uncomfortable and I haven't started treatment yet!!! Enjoy the good times.