Two years ago, I was blogging about FL’s strange and sudden illness, which came upon him in May 2007. By July, we had a diagnosis of Multiple Myeloma and a prognosis of “maybe 2 years” from our GP. And I hadn’t realised how much we had hung on that prognosis. Everything has been predicated by the thought that by July of this year, it was likely that FL would be in trouble again.
So when the hospital failed to obtain Freelite Test results for us in March, despite their warning in January that the MM was “coming back”, followed by another lack of results after a repeat test in April, we were both frustrated, but FL in particular was left floundering and noticeably upset.
So this week he rang his Macmillan nurse at the hospital and asked him to find out what was going on. To be told that he has nothing to worry about. The reason the hospital has been a bit off-hand about his Freelite result not turning up is that they have no reason to believe it will be bad news. The last data on FL’s file is from December 2008, when his kappa light chain score was 13. The Macmillan nurse says the doctors will not consider treatment until it reaches 100. And that by then he would be experiencing other symptoms. And that the Freelite test is usually performed every three months and can take 6 weeks to come back, not the “ten days” the doctor told us at FL’s last appointment! So realistically, the March test is only now due, never mind the requested repeat in April, which won’t come through until June! In the words of FL: “Cheese-oh!”
So do I book a holiday cottage for July?
Or do I watch FL for signs that something is amiss, like a mother hen clucking around her only chick? Does every bad golf score get added to the list of portents of doom? Does every evening he falls asleep in the chair become a sign of abnormal tiredness? Every spasm in the night become a sure sign that the cancer is attacking him from the inside out?
Or do we make plans for a family holiday, for the last year both kids are likely still to be living at home? We cancelled it at the last minute last year and the year before, but will we book a big funky house on the shores of a loch, invite my aged mother to stay for part of the week, allow my son to bring his electric guitar and my daughter her tap shoes? Encourage FL to golf every day? Cycle, walk, read, knit, dance, chill out? I am beginning to think it’s the only sensible thing to do.