For those of you who come here for the Myeloma news.
It is halfway through FL's week off Velcade before the next Cycle. Strictly speaking the "week off" is the third week of Cycle 5.
He has gone from constipation to diahorrea, which means less discomfort but similar tiredness. He summoned the energy to go to golf on Saturday and managed 4 holes before having to stagger back to the clubhouse for a rest. He just didn't have the strength to carry on. He then spent Sunday and Monday sleeping in his chair. On Tuesday he drove to the shop for a newspaper then fell asleep in his chair reading it. He said he found reading too tiring - which is very frustrating for him.
Then yesterday evening he asked me for a cup of tea. I went to hand it to him and in the transfer he dropped it and scalded his right wrist. We wrapped his arm in a cold wet tea towel and he took two paracetamol for the pain. Clearly he was badly shaken. I am still not clear what happened, but I think the peripheral neuropathy in his fingers has worsened and he didn't grip the mug tightly enough. I have seen this happen to a man in the hospital waiting room, but luckily that was just with a cup of cold water.
It is quite scary to see him so frail and vulnerable. It makes me wonder how near we are to him needing me at home to care for him and keep him safe. But he is very independent and would never admit to needing " a nurse". So ironic that the Myeloma is reduced, but so is his quality of life.
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6 comments:
Moving you and FL to the top of my Prayer list.... It is hard and I know you will do what is best. Hang in there and know that at least one person on the west coast is praying hard for you & your family!
Can I suggest that you don't hand cups to him. If you put it on a flat surface then he can grip the cup better. Then if he does drop it the cup will not go far and if it spills it won't be on his hand. (Also you won't get the blame for not handing it to him properly)
You are both in my prayers also.
Hugs, and thinking of you all, yes, it is scary; especially in the horrible weather we're having at the moment. Do keep warm and cosy.
Not sure what to say to help you both through this, but just remember that we're all here for you and sending positive thoughts.
Yes, you are both in our thoughts. It's a difficult time for you.
Thinking of you both and hoping everything gets much better very soon. It looks like Hamada is now going to have the dreaded Velcade too. The are having a group discussion on the 15th and we will know on the 18th Feb. His PP is now 18.1! Such a decision. Sending hugs and very good wishes to you.
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