So, Roo, how's FL this week?
Well, lets start with the list of current medications:
Omeprazole: to prevent stomach damage by other drugs
Revlimid: to fight the Myeloma
Dexamethasone: steroid to boost the Revlimid's action
Zovirax: anti-viral because he may or may not have come down with SHINGLES!
Daktarin: anti-fungal for oral thrush
Paracetamol: because everything hurts
Quinine: for cramp
Warfarin: to thin his blood to cope with the Revlimid
Co-Danthramer: for constipation
Benylin: for persistent cough
Calcichew: Calcium and vitamin D to help his bones
Zometa: monthly infusion for bone health
Is that the lot? I think so :(
He has managed to golf once in the past week, on a bright sunny day. The next morning he got up with a lumpy rash over one side of his face and neck. I sent him to the GP, who said he wasn't sure, but it might be Shingles. This is a viral thing, like chicken pox for grown-ups, and is highly contagious. If it IS Shingles he should be staying away from other people and won't be allowed in to the hospital for his appointment next week.
However, within 24 hours of starting on Zovirax (= Aciclovir, for all you drug afficionadoes) it seemed to calm down, though he still had a bright red face and a lumpy neck. So we thought we had caught it, whatever "it" was, and all would be well.
It could "just" be a reaction to the sun - Revlimid makes the skin extra-sensitive to sunlight.
But when I went home yesterday, I noticed his eyes seemed to be smaller in his face, his skin was peeling, and there were bags under his eyes... and hollows under the bags. He said he felt "rotten". My first instinct was that he looked dehydrated so I pumped him full of weak tea and orange juice. I also applied a gentle moisturiser to his face...
So, this morning I woke up beside Mr Piggy. His face has swollen up like a balloon, his eyes have almost disappeared. He is ringing the GP.
I am sincerely sorry if my attempts to soothe his skin with moisturiser have caused an allergic reaction, but I really think it was on its way anyway and I am not to blame. Well, that's my story anyway. Typical - that's me in the doghouse!
We are due at the hospital next Tuesday, but will need the all-clear from the GP in case he is a viral risk to the other patients.
He is not happy. Neither am I.