Wednesday, May 04, 2011

Myeloma-related Grumbling

Ah, there had to be a downer didn't there, after all those sunbeams and harebells?

Maths has obviously been a challenge round here recently, but after today we don't have to think about that again until the results come out. Phew!

But FL is my real worry. He is not happy. Really not happy at all.

He is too tired to golf. He has a spike of energy on a Wednesday when he takes his Dexies, but because he has been feeling so low up to that point, shambling around the house and sleeping in his chair, he just doesn't have the stamina to take himself round the golf course. He has golfed once in the past week and he didn't enjoy it, because it was just too much of an effort.
He doesn't walk the dog anymore. If he takes Hero out on a lead, FL is pulled off his feet if the dog decides to take a run after a rabbit. If he takes him out without a lead, there is the danger that the dog will run amok with the neighbour's puppies. While the neighbour thinks its quite funny when our massive mutt starts humping his (the man's) leg in an attempt to have his way with the lady spaniel, which is being held aloft, FL is mortified and tries to lift Hero off his front feet and drag him home. The exertion is too much and so is the stress. Yes, we ought to have the dog "done" but I think FL feels that would be cruel. So his "walking the dog" now consists of driving the car to the top field, at 15mph, with Hero chasing after, so puffed-out that he isn't aware of rabbits or puppies. The dog is going to have a heart attack and it isn't exercise for FL!
FL's skin remains super-sensitive to sunlight, burning very quickly and peeling off in sheets. Everywhere he goes, he is followed by a shower of dead skin cells, which is not good for his self-esteem. He gets very cold very quickly, so doesn't shower as often as he should. A bad combination.

And he can't hear anything we say. We have to repeat everything we say to him at least twice. Everything. Not just the odd word here and there. He has given up on hearing the TV and has to rely on the crackpot subtitles, which gives him a seriously distorted view of the world. When he has the radio on in his car, I can hear him approaching from the other side of the valley. Seriously. He has reported it to his GP, but he doesn't know what the GP said he was going to do about it.... because he couldn't hear him.
And he has a continual cough, day and night.
I got home from work yesterday and he was just sitting in his chair staring into space. I tried to talk to him but he just shook his head at me - I knew he couldn't hear me and was tired of trying.
He asked me to arrange a holiday for the summer. I scoured the usual cottage websites and found some lovely places, but he kept telling me they were too expensive and too far from a very particular, but not particularly special, golf course. I had to bite my tongue to prevent myself from saying "But you will only manage to golf once in the week anyway, so why are we building a holiday around this one course? A course that you say is just 'alright'?" I eventually managed to find a nice cottage that is a half-hour drive from the preferred course. Actually, it is a VERY nice cottage, so in the end it doesn't matter whether or not he goes to golf, we will have a sea view and dogs are allowed. Oh no! The dog is coming too?!
I think he might be depressed. And he has every reason to be! But it is hard to cope with. My attempts at reassurance and "class clown" acts fall on literally deaf ears. He is due back at the GP on Friday for blood tests, so I may have to accompany him, to reinforce the hearing issue, or at least find out if there is a plan.
Back at the hospital on the 17th.

12 comments:

Sigrid said...

This sounds really rough, and I wish I had some words of wisdom. I'm wondering if there might be someone on the edge of the medical field besides the GP who could offer some help. Sometimes there is such a focus on identifying and medicating every symptom, that the docs forget there is a real person who needs too feel some comfort. And there can be some idiosyncratic drug interactions. Good luck.

Katherine said...

So sorry to read this, hope you get something from the GP, whatever 'something' is.

Scruffybadger said...

Sounds like Hero is also trying his hardest - in his own dog way- to bring some smiles (the images you create certainly made me chuckle!) xx

tim's wife said...

OH boy. This won't do at all. I'm so sorry FL is feeling so poorly. I hope he will think about hearing aids. I'm sure it's hard on him not to be able to golf too.
I've no magic advice. Just sending support from over here. I did solve my "pulling puppy" problem with one of those pronged collars.
I got tired of her dragging me around the block and yanking my back out of sorts. It works very well but I'm not sure a rabbit
would have her holding back anyway and having an...um "undone" dog with a cute spaniel around would probably render it ineffective too.
Hope things improve for all of you.

feresaknit said...

I take it the very suggestion of asking about an anti-depressant from the GP would fall on deaf ears (sorry I couldn't help myself). When time is more finite than you'd like sometimes you need to do things you wouldn't normally do to make the most of it. I certainly take more painkillers than I would ever have considered on that basis. I do hope things improve. :D

Lorna said...

Like everyone else I wish I had a magic wand to at least ease the current situation. Sorry there isn't much more advice we can give you. At least you know there are people out there who care.

Fingers crossed for you all, hang on too late for the exam. I'm sure that will be fine too.

Paula said...

Hope things get better...I'll say a little prayer. He's lucky to have you :)

didyoumakethat said...

Sorry life is so taxing right now. Sounds stressful for all of you. Am sending a hug your way.

christinelaennec said...

This all sounds so hard, and yet as always I am amazed by your humour and resilience. And you were able to book a nice cottage exactly where he wanted to go!!! Under normal circumstances that would be a triumph, I think.
I hope things get better soon. I'm sure you are a huge comfort and help to FL, even if it doesn't seem like you're "doing" anything.
And I'm glad parabolas are not part of your daily life now - though I hope you treat yourself to more brownies!

Roobeedoo said...

Thanks for listening, as always! And as always, Wednesday brought renewed energy and smiles from FL - albeit drug-induced! I suppose the trick is to remain upbeat and live for the middle of the week, pending a better solution.

Sandy said...

You really must go and let the GP know about the hearing and suspected depression issues... being able to hear properly will perhaps help to lift the depression as well. The cough is disturbing on many levels, and should be addressed as he could have a kind of 'walking pneumonia," which would explain his lack of energy.

But you probably have thought of all these things and I just wanted you to know I was thinking about you both and listening to your concerns... intending the GP can give you some answers...

Susie Hewer said...

It's tough being ill and it's tough supporting someone you love when they are ill. Sadly, depression is often a part of such a cruel illness. Massive hugs to both of you.

Keep knitting and sewing to stay sane.