Friday, January 27, 2012

Osteonecrosis Update

This post is for people who need to know about bisphosphonate-induced osteonecrosis of the jaw.
If you are a casual sewist / knitter / general crafty person looking for a good time, I strongly recommend that you come back tomorrow when I should have something more appealing to talk about / show you.  OK?  You have been warned...

So, today was FL's review appointment at the Maxillofacial Unit of the hospital.  He was last there on 23 December.

First off, they had lost his file.  The Consultant was immensely apologetic, but he was still able to access FL's x-ray images online, so it led to him giving FL a totally fresh appraisal, which I think was of benefit.  He remembered FL's case:  well, he would as it is still quite a rare condition. He asked us to remind him of the background:  3 extractions conducted by the local dentist following intravenous bisphosphonates, which we later realised was contrary to the guidance put out by the Scottish Dental Council and the drug company.  Subsequent lack of healing to the extraction sites, and the beginnings of trouble with his upper left canine.  Since then, his tooth has become looser and he has been experiencing bad breath / smell and pain in his mouth.

The Consultant examined FL.  He immediately said that the tooth was very loose and badly infected.  Pus was leaking from the root of the tooth, but also from the sites of the previous extractions.  He checked the x-ray again and pointed out an area of blackness along the upper jaw:  this could either be FL's sinus or a cyst within the bone.  The only way to find out which it is, is to carry out a CT scan.  An appointment will be made in the next two weeks.

The Consultant was wonderful.  Seriously.  He explained that there was no point in FL suffering the pain and unpleasantness that this tooth was causing, and he recommended removing it there and then.  This again puts FL's jaw in jeopardy from the spread of osteonecrosis (bone death), but as this tooth sat alone between two previous extraction sites there was literally nothing to lose:  the jaw is already infected in this area.

So, the Consultant instructed the Staff Grade dentist to remove FL's tooth.  I had to sit through the extraction to act as interpreter as FL had trouble following what was being said.  I tried not to look!  The dentist injected him with local anaesthetic:  a larger dose than usual because of the level of infection.  She removed the tooth efficiently and calmly and injected the site with a saline solution.  Because of the holes along FL's jaw bone and gums, it poured out of several other places, which was rather distressing for him and a nasty surprise for the nurse, who had never seen this condition before.

He is now on a two-week course of antibiotics and has to use a chlorohexidine mouthwash as often as he can stand it.  Paracetamol for the pain.

I haven't checked the "staging" criteria, but I think this indicates that he has a more advanced case of osteonecrosis than was first suspected.

He goes back in four weeks for a review.  But in the meantime we have to be vigilant. Any facial swelling or excessive bleeding requires rapid action.

Soft food for the next few days:  porridge / soup / rice pudding.

FL was rather shaky on the way out.  He had brought his car, so mustered the will to drive himself home, but I followed along behind him.  He is quite calm now and is reading the newspaper.  But we both know this is another nail in the coffin.

22 comments:

Emma said...

Crickey! That is so not good, on so many levels. I'm not surprised that FL was shaky. i bet you were too. Probably still are.
Being a bloke, I'm guessing he won't take kindly to you standing over him whilst he uses the mouthwash. He really must, if only to make his mouth a slightly more pleasant place for him to live with.
Nothing helpful to say really. Just that I often think of you both and worry about FL, despite never having met him. Virtual hugs to you both, if you'll accept such soppiness.

Annie said...

Virtual hugs from me too, however soppy. Funny old thing this bloggy world, I have never met either of you but I also often think of you both. I worry for you as well but admire you for your bravery (and I know you probably don't feel brave). xxx

Saffi said...

Sounds like a rough day for you both. I'm hoping you get a chance to sit down, take a deep breath, have a cup of tea and knit a few stitches. Thinking of you both lots this weekend.

Christine Laennec said...

That was not what I was hoping to hear, but thank you for the update. My (and my husband's) thoughts are with you tonight. Hugs from us too.

Gaylene said...

Thinking of you both. Take great care of FL, but take great care of yourself as well.

KC said...

Thinking of you both.

CarpeDyem said...

Thoughts, wishes and love with you both x

Twelfthknit said...

Thanks for updating us. Rough day (British understatement). I hope the treatment eases FL's pain and gets rid of the infection. best wishes x

Sadie said...

I'm glad the consultant was good, but so sorry to hear that the news wasn't better. I never know what to say to these posts, but I do follow them and wish you both all the best.

Dibs said...

Blimey!!All this and paracetamol only? Is that strong enough for the pain? I hope he feels better, and thank goodness for the consultant.

sigrid said...

So sorry for both of you. Sending my wishes for a peaceful weekend.

tim's wife said...

I know you said in a former post that you would not sue that dentist but boy, if ever there was a case of malpractice. Admittedly, I have walked away from several lawsuits in the past that I probably should have pursued(I need more stress like I need more in-laws) but this dentist REALLY dropped the ball here.I hope now that the dodgy tooth is out, FL's pain clears and things improve.

Clare said...

I'm sorry you both had such an awful day and really hope FL's mouth heals faster now that pointless tooth is out. xx

Jane said...

I was thinking of you a lot yesterday. The tooth's out, the consultant was excellent, fingers crossed that you get a few more positives in the near future. Lots of love. xx

Happymousefairy said...

Your honesty is inspiring - its so easy to be honest about the good times, much harder when all is not sunshine and roses.

You and FL are in my thoughts, and I also add my virtual hugs to the pile.
Xxx

Lorna A said...

Well there isn't much I can say but poo! Here's hoping that now the tooth has gone and FL is off the bisphosphonates things improve. I read somewhere that they can. :-)

Good luck with keeping him on track with the mouthwash, I bet he thinks alcohol would be better ;-)

Diana said...

I'm so sorry you're both going through this. The level of incompetence you have to deal with with the medical folks appalls me, though. They're like Keystone Kops with stethoscopes! I'm glad at least something good came out of it today.

Lizzi said...

I never know what to say either but I think Annie said it all for me.
Be strong.

L

Scruffybadger said...

I winced reading this (I am a woose) but I hope that everything's all being managed now at home & that FL is not in any pain. Smoothies are good too?

Anonymous said...

keeping you and your FL close to my heart, roo. so glad to know you had such a compassionate and competent clinician to deal with such a painful and scary issue. i know there is some good comfort that comes from that, in spite of past crappiness you both have had to endure. sending gentle but powerful vibes to help FL's pain, and for you to hang on to hope. warm hugs, virtual or not - karen

Evie said...

Sending you both hugs and best wishes and prayers. Keep strong.

feresaknit said...

Don't know how bad FL, and you, must have felt I was distressed just reading about things leaking out of other places.