Tuesday, July 15, 2014

Pomalidomide Prescribed!

We don't understand how it can be true... but today we went to the hospital and the Consultant  prescribed Pomalidomide for FL, despite a recent SMC ruling that it was not a recommended drug for prescription by NHS Scotland.
FL was startled.  He had assumed that he was going to receive some kind words and be sent home to fend for himself.  He blinked and grinned at the Consultant.
I could see him considering asking the obvious question about the cost of the drug and how they could possibly be allowing him to have it, but he just laughed and said he thought it had just been for 3 months...?
No, not at all.  As long as it is working, he can continue to take it... but at the first sign of his Myeloma number rising, it will be stopped.

So... bring on the dancing girls!  Pom pom pomalidomide cheerleaders cartwheeling across the fields, please!

I need a drink.

P.S. That poppy appeared from nowhere in among the weeds at the edge of the field.
It was a sign!

28 comments:

Louise Perry said...

What fantastic news. xx

Marie said...

You called for a dancing girl, so I'm doing a happy dance for you both! Great news!xx

Wakeymakes said...

Big sigh of relief and virtual hugs xXx

Sew little time said...

yaaay! what great news!

carole oneill said...

Great news. Long may it last

Jennifer Hill said...

SO pleased for you both. I was still thinking about what to say regarding your previous post; sympathy seems so inadequate. To provide improvemnt and then take it away would have been so cruel. I'm so pleased they didn't do that to you. Hooray, hooray. Jen

Lynn Barnes said...

Oh, happy, happy news!

rosylea said...

Ever so pleased for you both! I am saluting your news with a glass of red :)

beate grigutsch said...

confetti! champagne!
this is soooo great!!!!!
xx

Jenni said...

Nice to read some good news x

ravelledsleeve said...

Yay! So pleased to read this :-D

christinelaennec said...

Really thrilled for you both! Hooray! Your poppy is, I think, a paeony hybrid papaver somniferum - a peony-like opium poppy. Interesting to know how it got into the field! If you let the seed pod ripen and save the seed you might have more next summer. They like to be sown in cool weather, i.e. early April or so. Or you could put yourselves all to sleep by baking poppyseed muffins! (On second thoughts, perhaps not...)

azterya said...

Brilliant!

CarolS said...

SO happy for you, the best news, hurray. Wonderful poppy too.

clb said...

That's so good to hear. All the best to both of you!

BippityBoo JewelrySupplies said...

A long-time lurker from way back, and a big fan of your blog, you and your family...I am relieved and smiling!

Cynthia

christina neumann said...

I am so happy for you and FL. May it do the wonders it needs to.

SewTypical said...

Great News!

I bet that consultant is a sewer that reads your blog...
:-)

Jessica Walker said...

Oh, hooray! Yes, don't ask questions...also a lurker, but delighted for you both!

sulkycat said...

Excellent news!

Sarah said...

Congratulations! I sew and my dad had a brain tumour for ten years so I empathised with your situation. I hope things go well for a long while. Also can you suggest any good fabric stores in Scotland especially In Aberdeen, Skye and Inverness as I'm coming over to visit my sister next month?

poppyinstitches said...

how fantastic, great news!!

MaryinTN said...

Wonderful news!!!!!

Roobeedoo said...

Thank you everyone for your kind comments :)
We live to fight another day!

tim's wife said...

That is wonderful. But, OH, what a roller coaster ride this MM nonsense is. JEEZ!

Sandy said...

So glad to hear the Pom is available for FL and that is sure to keep you both smiling for awhile... intending it is a good, long while.

Sarahel said...

So so glad to read this.

Annie Cholewa (aka knitsofacto) said...

Catching up here after a blog break ... that's fabulous news :)