Wednesday, October 21, 2015

Toesday in the Waiting Room

For the Myeloma fans, with a dash of knitting.
Thank you to everyone who commented on my last update.
I listened and I understood and I am thinking.

Waiting Room knitting -two sock toes
FL went back to see the Consultant yesterday.
We are not much further forward... except... maybe that says it all.

The blood test anomalies which confused the Consultant and other doctors over the past couple of weeks are still present, but are no longer a cause for immediate concern.
All of the following are slightly better:  kidney function is ok, his potassium level is no longer a threat to his heart, and he is not as anaemic as he was.

However, there are still the unexplained "raised eosiniphils".  Now that I have worked out how to spell that phrase, I have googled it :)
It would appear that the most common causes of raised eos are: allergies related to asthma; a parasitic infection; a drug allergy.
However, a little deeper delving revealed a study that linked raised levels of eos  with cancer activity in the bone marrow.  Another google took me to the Mayo Clinic where they have found raised eos in patients with CML (Chronic Myeloid Leukemia). 

The Consultant only had the initial results of FL's bone marrow test from last week:  there was "some Myeloma" but mainly the test revealed "very scruffy cells" which the Consultant attributed to the many chemotherapies FL has endured over the past 8 years.  Basically, FL's bone marrow is worn out.

The full bone marrow results will include a report on "genetics".  That will reveal whether or not his cancer has mutated.  The Mayo pages on CML say that it is diagnosed by the presence of the "Philadelphia chromosome", a mutated gene....way too much detail that I don't really understand.
Stop googling Roo!

New yarn - because I knit socks

The bottom line is that the Consultant will not make a decision on whether or not to restart FL on Pomalidomide until she has the full bone marrow test results. 
Saying that, I felt as if we were being prepared for  the "no more Pom" talk.  She was especially kind to FL and appeared to be shifting her emphasis from attacking the cancer to reducing his pain.

Having been weaned off Gabapentin, FL is now trying out Pregabalin for his nerve-related pain. He is still taking Co-Codamol for the bone pain.

Back to the hospital in two weeks.

17 comments:

Lorna A said...

I am so sorry to read things have been "difficult" for you both. I'm only just catching up on the outside world whilst sitting in a broken down car, I didn't think to bring my knitting out with me.

I stopped Googling 3 years ago when I realised that it didn't matter what I found out, either it didn't apply or the doctors wouldn't listen. At least pom is still an option in Scotland. X

Sarahel said...

Just catching up with your posts, and realising you two have been through the mill again of late. Do hope things settle for you. My OH is more than 30 years older than me. He's had a round of hospital appointments recently and they always ask us (or worse still just me - in a 'does he take sugar' manor) if he lives alone.

Thinking of you both.

Sadie said...

Sending *hugs* and all best wishes to both of you xx

Sue said...

I have been reading your blog for a couple of years. My thoughts are with you both x

Sue said...

I have been reading your blog for a couple of years. My thoughts are with you both x

CarolS said...

Glad you're posting and knitting. thinking of you

Lynn said...

Thank you for sharing so much with us. I know it can't be easy sometimes. Googling, while answering your questions, can sometimes lead down darker rat holes than we need to know about. Knit. Knitting is good.

Lynn said...

Thank you for sharing so much with us. I know it can't be easy sometimes. Googling, while answering your questions, can sometimes lead down darker rat holes than we need to know about. Knit. Knitting is good.

Sue said...

I have been reading your blog for a couple of years. My thoughts are with you both x

Sue said...

I have been reading your blog for a couple of years. My thoughts are with you both x

poppyinstitches said...

it is so tricky finding out more indepth medical things online, I try really hard not to after my annual trip to see the consultant. Thinking of you both x

Linda said...

I agree, googling can lead you down the rabbit hole. I've done it myself with my diabetes. And yes, you find out things that don't apply or the doctors won't listen. ((HUGS)) to you both and hope you get some answers soon.

Twelfthknit said...

Bad rwaction to Gabapentin. Good reaction to Prwgabelun aka Lyrica. It is part of my pain-control regime and as an add-on for me it really helps. Hope it helps FL

TempestKnits said...

Hello Ruth. I have followed your blog for many years, but rarely comment. I did just want to share my own experience of raised eosinophils in case it is of any help. I experienced anaphylaxis after a single dose of an antibiotic, and my eosinophils remained raised for over a year afterwards. My anaphylaxis specialist (UK), says that drugs are almost always the culprit, even if an allergic reaction is not physically evident. Certain drugs are more likely to produce an IgE response, such as opiates, antibiotics or anaesthetic agents, but almost any drug has this potential (especially in immuno compromised patients). It is very unlikely to be due to a parasitic infection unless one has travelled to an exotic location recently! Perhaps it might be an idea to speak with FL's Consultant with a view to reviewing which medication may be the culprit?

Sending you and FL my very warmest wishes,

Marie.

Roobeedoo said...

Marie - thank you for your comment. Yes, the consultant does think a drug is to blame, probably the Pomalidomide. Back on Tuesday for a decision on whether or not to restart him on that drug.

susan Gagnon said...

I just came across your blog through My Sister's Knitter blog and grateful I did. I'm going through about the same with my Father as you are with FL. I no longer feel alone in this journey. I love the colors of your sock yarns and am enjoying your blog. Have a great day.

TempestKnits said...

I am so very glad that my information has been of some help, Ruth. Many best wishes to you both.

Marie.